TASCA Newsletter (Winter 2020)
July 13, 2020
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The latest TASCA newsletter is out now. Have a read and get updated on all of TASCA’s activities and advocacy work! Contents: Mental Health Support for
Advocacy
Through lobbying and engaging healthcare providers, TASCA advocates on behalf of patients and their families for equitable access to best care and support as well as adequate funding for impactful research into the treatment of haemoglobin disorders.
Education
TASCA works to raise public awareness and reduce the stigma of haemoglobin disorders through school visits, public events and media engagement. We believe in the importance of knowing your own genetic status through carrier testing.
Support
TASCA believes that care should extend beyond the treatment centre. We support those affected by haemoglobin disorders through peer support and social events. We also empower patients and families through education and information.
About TASCA
Here at TASCA, we are driven by a single goal – to do our part in making the world a better place for those living with genetic blood disorders. We strive to build productive relationships and make a positive impact with all of our pursuits. We want to empower those living with a genetic blood disorder so that they can live their best life and provide them with support each step of the way.
Carrier Screening
7% of the global population are carriers of a gene that can cause a haemoglobin disorder. Carrier couples have a 25% chance of conceiving a child with a haemoglobin disorder during every pregnancy.
Carrier screening tests are available and free with a referral from many GP clinics. Know your risk and get tested today.
What are haemoglobin disorders
Haemoglobin disorders are inherited blood disorders where haemoglobin is not formed properly or is not produced in enough quantities.
This results in less or no functioning red blood cells causing lack of oxygen available to the body, as well as many secondary complications. The most common forms of haemoglobin disorders are sickle cell disease and thalassaemia.
World Sickle Cell Day Light Up
June 23, 2020
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All Melbourne Adelaide Canberra Brisbane Perth Hobart Check out all the different places around Australia lighting up for June 19th. Do you have photos
Georgie Crozier MP Raises Question on Mental Health For Thalassaemia and Sickle Cell Patients
June 23, 2020
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https://www.tasca.org.au/wp-content/uploads/2020/06/18-June-2020-Crozier-Thalassaemia-and-Sickle-Cell-Australia-Chamber-Contribution.mp4 Thank you to Georgie Crozier MP for bringing attention to the need for mental health provision and support for Thalassaemia & Sickle Cell patients and their
