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Infographic from Thalassaemia International Federation on the characteristics, eligibility criteria, and potential risks of current and emerging cures.
Visit the TIF website for more resources like this.
Researchers at the University of New South Wales are recruiting participants to consider a research study titled “Couples’ decision-making when considering preimplantation genetic testing (PGT) because of a hereditary condition”. Preimplantation genetic diagnosis (PGD) is a reproductive technique used to test embryos to determine whether they are affected by a particular genetic condition. It is also known as “Preimplantation Genetic Testing for monogenic/single gene defects” or “PGT-M”.
This research study aims to investigate couples’ decision-making towards using PGT-M by using an online survey.
You and your partner are eligible to participate in this study if you and your partner are at risk of having a child affected by a genetic condition and are either considering using PGT-M or have already undergone PGT-M.
Participation in the study would involve completing an online questionnaire, which will take about 15 minutes. If you have a partner, and your partner is also interested in participating in our study, please forward this email to your partner. The Participant Information is included in the link below, which provides more details about this study and describes what participation will involve. The first 200 individuals who complete the questionnaire will be provided with a $30 Coles gift card to reimburse their time. Participation in this research is voluntary. Your decision regarding whether to take part will not affect your relationship with your doctor and UNSW.
Though both you and your partner are encouraged to take part in our study, only one individual’s participation is also welcome. If you are interested in participating in this study, please click on the link relating to the appropriate questionnaire version below.
Link 1: Questionnaire for women who have undergone PGT-M (PGD)
Link 2: Questionnaire for women who are considering PGT-M (PGD)
If your partner is interested in participating. We ask that your partner click on the link to the appropriate version below or copy and paste the URL into an internet browser:
Link 3: Questionnaire for partners of women who have undergone PGT-M (PGD)
Link 4: Questionnaire for partners of women who are considering PGT-M (PGD)
If you or your partner have any questions, please contact the Research Coordinator, Ms Lin Cheng at UNSW (email: lin.cheng@student.unsw.edu.au or call 1800 814 403 for free).
You can also contact the Coordinating Principal Investigator Professor Bettina Meiser via email address: b.meiser@unsw.edu.au or call 9385 0025.
