Peter on 3XY Radio Hellas

Peter, TASCA’s Chair, will be a guest on John Paganis’ radio segment live at 5pm next Friday on 3XY Radio.

Peter will be speaking about his own experience living with thalassaemia.

Tune in to AM 1422 or stream it online.

TASCA Guests on 3XY Radio Hellas

Dr John and Mary Tassigiannakis will be guests on John Paganis’ radio segment live at 5pm tomorrow on 3XY Radio Hellas.

They will be speaking about haemoglobin disorders and the shifting landscape of the conditions in Australia.

Tune in to AM 1422 or stream it online.

TASCA AGM 2020 Notice

Thalassaemia and Sickle Cell Australia

Dear Member     

You are invited to attend TASCA’s Annual General Meeting to be held on 11th November 2020, online via ZOOM. (See link details in the agenda) 

TASCA is formally calling for nominations to the Committee of Management for the period 2021-2022. The Committee consists of 9 positions, 8 of which are currently filled.   

The Committee of Management positions are as follows:  

Executive Committee 

  • Chair – Peter Verveniotis 
  • Deputy Chair – Robbin Vissakodeti 
  • Treasurer – Joanne Mucciaciaro 
  • Secretary – Pat Bollard 

General Committee 

  • Yannis Androulakis 
  • Ella Luong 
  • Karen Parr 
  • Dr John Malios 

Therefore, one General Member position will be open to nominations from current financial members. The term of the position will be two years as per the Rules of Association.      

The following documents are attached: 

Please read all documents carefully and note that if you wish to nominate either yourself or another person to Committee positions, current financial membership of TASCA is necessary. 

The Committee and I look forward to seeing you there. 

Please RSVP through Eventbrite using the link below

Kind regards 

Peter Verveniotis 

Chair 

TASCA Newsletter (Spring 2020)

The latest TASCA newsletter is out now. Have a read and get updated on all of TASCA’s activities and advocacy work! 

Contents:

  • Chair’s address
  • TASCA 2020 AGM
  • TASCA Update
  • Upcoming Events
  • Research Developments
  • Who’s Inspiring Us
  • TASCA Online
  • Around Australia
  • TASCA 4 Kids (Including fun activities and competition for kids!)

Want a physical copy? Let us know by sending a request through email.

You can also download a PDF here.

View previous newsletters here.

TASCA Newsletter (Winter 2020)

The latest TASCA newsletter is out now. Have a read and get updated on all of TASCA’s activities and advocacy work!

Contents:

  • Mental Health Support for Patients
  • Chair’s Report
  • Australia Lit Up Red
  • National Blood Donor Week
  • Medical Infusion Unit Opening
  • Gina’s Birthday Fundraiser
  • Smart Apps and Anemia
  • TASCA Staff Changes
  • Online Chat Room for Teens
  • Genetics Workshops
  • Social Media Challenges
  • Upcoming Events

Want a physical copy? Let us know by sending a request through email.

You can also download a PDF copy.

View previous newsletters here.

[Media Release] AUSTRALIA LIGHTS UP RED FOR WORLD SICKLE CELL DAY

FOR IMMEDIATE RELEASE

DATE: 17/06/2020

AUSTRALIA LIGHTS UP RED FOR WORLD SICKLE CELL DAY

Melbourne, Australia: LANDMARKS across Australia are set to light up red for World Sickle Cell Day on 19 June to shine a light on the rare genetic blood condition unknown to many around the country

For the first time, structures including the Melbourne Star, Brisbane’s Story Bridge, Perth’s Trafalgar Bridge and Canberra’s Telstra Tower will light up red in solidarity for patients affected across Australia by sickle cell anaemia. More than 270,000 infants are born with sickle cell anaemia each year across the globe, and cases are increasing in Australia.

Thalassaemia and Sickle Cell Australia (TASCA), the nation’s peak patient advocacy body, has coordinated this event to raise awareness on the condition. TASCA is a not-for-profit organisation that has been serving Australians living with genetic haemoglobin disorders, and their families, since 1976.

Sickle cell anaemia affects the body’s ability to produce healthy red blood cells that provide oxygen around the body. Sufferers battle frequent, painful blood clotting episodes caused by the sickle-shaped blood cells and require lifelong blood exchanges.

Robbin Vissakodeti, TASCA’s Deputy Chair, whose wife and daughter both have a form of genetic blood disorders said, “For us, sickle cell affects our everyday lives. My wife had her spleen removed because of sickle cell complications and we have to take every precaution to prevent infections as her immune system is compromised.

“When we started thinking about having kids, I knew the risks and we were prepared. World Sickle Cell Day this year is about getting people to have that conversation with their doctors, being informed about the risk and making the right decision when it comes to having children.

“Hospital visits definitely take a toll on the family, but we are grateful that we live in a country with a supportive healthcare system. Treatment seems to be constantly improving and we are looking forward to what the future will bring.”

ENDS

For media enquires contact:

Samuel Lam, Thalassaemia and Sickle Cell Australia

E: hpo@tasca.org.au, T: 03 7015 5637

Notes to editors:

  • For more information on TASCA, sickle cell anaemia and World Sickle Cell Day, visit tasca.org.au.
  • Full list of sites that will participate in the light up include:
    • Melbourne Star (VIC)
    • AAMI Park (VIC)
    • Kingston Clock Tower (VIC)
    • Story Bridge (QLD)
    • Victoria Park (QLD)
    • Trafalgar Bridge (WA)
    • Council House (WA)
    • Canberra Telstra Tower (ACT)
    • Elizabeth Mall (TAS)
    • Kennedy Lane (TAS)
    • Railway Roundabout (TAS)
    • Franklin Square (TAS)
  • Thalassaemia and Sickle Cell Australia was established in 1976 and provides support and advocacy to those affected by genetic blood disorders.
  • Sickle cell anaemia is an inherited blood condition causing misshapen red blood cells called sickle cells. This leads to a reduction of useful red blood cells and anaemia. Sickle cells also result in painful and hospitalisable blood clots in many patients.
  • A simple blood test will show if couples are at risk of having a child with sickle cell anaemia.
  • Treatment for sickle cell anaemia include medication and blood exchanges.
  • Sickle cell anaemia is most common in people of sub-Saharan African, Indian, Middle Eastern and Mediterranean background. However, migration has spread this condition globally.

 

 

TASCA Newsletter (Autumn 2020)

The latest TASCA newsletter is out now. Have a read and get updated on all of TASCA’s activities and advocacy work.

Contents:

  • Mental Health Support for Patients
  • Chair’s Report
  • Australia Lit Up Red
  • National Blood Donor Week
  • Medical Infusion Unit Opening
  • Gina’s Birthday Fundraiser
  • Smart Apps and Anemia
  • TASCA Staff Changes
  • Online Chat Room for Teens
  • Genetics Workshops
  • Social Media Challenges
  • Upcoming Events